An increasing number of individuals and families are being supported by our Advocacy Ambassadors, with forty requests for support being referred across the country.
Ambassadors are supporting individuals with practical issues such as finding suitable equipment and navigating the benefits system. They are also here should you want to talk to someone who knows first hand what it is like living with a neuromuscular condition.
On Friday the Muscular Dystrophy Campaign's head office was bustling as brand new Ambassadors attended their first training. Five new Ambassadors were added to the network and they learnt all about the advocacy service at the charity. The Ambassadors shared experiences and debated practice cases.
Andy Barwell, from Portsmouth, decided to join the network after meeting some of the Ambassadors at the Limb Girdle Information Day. Andy said:
I wanted to become an Ambassador to help people enjoy the normal activities, holidays, work and social aspects of life. Also to share experiences, the importance of physio and maintaining normality with a disability.
Fleur Perry, from the South West, attended the training via Skype link:
The training itself was excellent. We discussed a variety of topics, from what the different departments of the Muscular Dystrophy Campaign do, to the responsibilities of an Ambassador and exploring a few "What if?" scenarios. As an Ambassador, I will be an "ask me anything" bod, providing information and advice on care and support, equipment, benefits and well, anything really. If you don't know who to ask, ask the Ambassadors.