On Friday 27th June The Muscular Dystrophy Campaign held and supported patient and professionals events in Cambridge and Southampton.
The charity and the Wessex Regional Muscle and Nerve service held a joint information day for individuals and families living with neuromuscular conditions in Southampton. The event was well attended with roughly 85 participants who received presentations from dietitians, neuromuscular consultants, as well as information on mobility aids and an update from the charity on advocacy support and the information service.
The feedback from those who attended was very positive and people have asked for more events of this type in the future.
At the same time, in Cambridge, the Muscular Dystrophy Campaign joined health professionals with a neuromuscular interest from across the East of England for the third annual Neuromuscular Study Day.
The charity provided an update on the latest national and East of England activity in the Bridging the Gap project, outlining ways in which the charity is able to support professionals, patients and their families through:
Professionals, including consultants, physiotherapists, occupational therapists, care advisors and the new nurse specialist who will start in a few weeks, also heard updates on:
• respiratory management for neuromuscular conditions • orthotics • congenital myasthenic syndromes and myasthenia gravis • the latest clinical trial developments across the country
Neuromuscular Outreach Manager Bobby Ancil said:
We are so pleased to be able to support and organise these professionals upskilling and information day events for people affected by neuromuscular conditions. The feedback from the events has been really positive so we look forward to running similar events with other neuromuscular centres across the country soon.
To find out more about the Bridging the Gap project or to get involved in any of the forums or working groups please contact Bobby Ancil on 07920188970 or email him at firstname.lastname@example.org