EURORDIS ( EURORDIS )

EURORDIS

EURORDIS's picture

About EURORDIS

EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 624 rare disease patient organisations in 58 countries.

We are the voice of 30 million people affected by rare diseases throughout Europe.

EURORDIS press release, blog etc

12/20/2018 - 03:03 Why is a rare disease national plan or strategy needed in your country?
12/10/2018 - 07:33 Register for EURORDIS Multi-Stakeholder Symposium on Improving Patients Access to Medicines
10/15/2018 - 09:22 Borys story: Living with metachromatic leukodystrophy
09/10/2018 - 19:30 INNOVCare Project results demonstrate need for integrated care for rare disease patients
07/09/2018 - 11:06 Apply for the EURORDIS Winter School on Scientific Innovation & Translational Research 2019!
06/12/2018 - 14:08 Community Advisory Boards connecting patients with research
03/12/2018 - 10:59 Attend the largest rare disease multi-stakeholder event of 2018!
02/12/2018 - 09:12 Show Your Rare for Rare Disease Day 2018!
02/08/2018 - 07:53 EURORDIS Community Advisory Board (CAB) Programme
12/11/2017 - 07:08 Rare disease community calls for radical change to improve patients access to medicines
11/16/2017 - 06:23 100 days to go get involved in Rare Disease Day 2018!
11/06/2017 - 05:38 European Conference on Rare Diseases & Orphan Products 2018 Vienna
10/10/2017 - 04:39 New network of Parliamentary Advocates for Rare Diseases
09/26/2017 - 06:58 Apply for the EURORDIS Summer School 2018!
07/11/2017 - 09:52 European Patient Advocacy Groups in action!
06/28/2017 - 11:56 First Spanish edition of EURORDIS Summer School
05/10/2017 - 10:35 Improve Compassionate Use Programmes to ensure patients early access to medicines
04/12/2017 - 05:54 Rare diseases: New steps in EU collaboration to improve citizens lives