National Organization for Rare Disorders ( NORD)

Primary tabs

NORD's picture

Management

Contact Address

About National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

NORD press release, blog etc

Fri, 12/13/2024 - 08:19 Tracey Sikora Joins the National Organization for Rare Disorders (NORD) as Vice President of Research and Clinical Programs
Tue, 08/27/2024 - 18:41 NORD and Rare Disease Diversity Coalition Release New Survey Findings on Inequities in the Rare Disease Community
Wed, 07/10/2024 - 17:45 Why Should I Get Genetic Testing If I Already Have a Diagnosis?
Thu, 05/23/2024 - 14:11 NORD Awards $65,000 in Grant Funding for Research into Two Rare Diseases, AVM and MMIHS, at NORD Rare Disease Centers of Excellence
Thu, 05/23/2024 - 14:05 Vermont Rare Disease Advocates Celebrate Passage of New Law Bringing Step Therapy Reform
Fri, 05/10/2024 - 15:07 NORD Launches First Canadian Patient Registries on Its IAMRARE Platform
Fri, 12/23/2022 - 12:13 Congress Year-End Legislative Package Delivers for the Rare Community
Fri, 11/18/2022 - 19:08 Request for Applications: New Patient Registries
Fri, 09/30/2022 - 15:34 NORD Statement on User Fee Reauthorization and Continuing Resolution
Wed, 09/21/2022 - 08:26 NORD Opens Applications for Two New Rare Disease Research Grants
Mon, 08/01/2022 - 09:14 NORD to Host Historic FDA Meeting on Galactosemia, in Partnership with the Galactosemia Foundation
Tue, 07/19/2022 - 10:21 Take Action on July 19: Help End Harmful Step Therapy Policies By Urging Congress to Support the Safe Step Act
Wed, 06/29/2022 - 07:11 NORDs Living Rare Forum and Rare Impact Awards Highlight Powerful Patient Stories and Community Rock Stars
Thu, 06/16/2022 - 09:06 Baby Formula Shortage Highlights Need for Congress to Act on Medical Nutrition Equity
Thu, 06/09/2022 - 17:22 Colorado Becomes 24th State to Establish a Rare Disease Advisory Council
Fri, 04/08/2022 - 12:10 This week, the National Organization for Rare Disorders (
Mon, 02/28/2022 - 14:46 The Most Important Holiday Most Dont Know: Celebrating Rare Disease Day
Mon, 12/20/2021 - 15:32 Helping Rare Disease Patients: A Conversation with Dr. Neilan about the Rare Disease Centers of Excellence Program
more

InfoBox

HomePagewww.rarediseases.org
Facebookwww.facebook.com/NationalOrganizationforRareDisorders
Twittertwitter.com/rarediseases
YouTubewww.youtube.com/user/raredisorders
LinkedInwww.linkedin.com/company/national-organization-for-rare-disorders
Wikipediaen.wikipedia.org/wiki/National_Organization_for_Rare_Disorders