National Organization for Rare Disorders ( NORD)

Primary tabs

NORD's picture

Management

Contact Address

About National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

NORD press release, blog etc

Sat, 05/24/2025 - 10:57 FDA CBER Director Dr. Vinay Prasad to Keynote NORDs Inaugural Rare Disease Scientific Symposium, Convening Top Researchers, Industry Leaders, and Federal Regulators
Tue, 05/13/2025 - 17:46 Arizona Becomes the 31st State With a Rare Disease Advisory Council
Tue, 04/29/2025 - 15:04 Undiagnosed Day: Medical Students Work to Change Rare Disease Curriculum
Tue, 04/08/2025 - 15:36 Guest Blog: The Power of Patient Advocacy in Drug Development
Fri, 04/04/2025 - 09:58 A Deeper Look at the New NORD Rare Disease Scientific Symposium
Thu, 02/27/2025 - 16:22 NORD, Paramount Pictures Join Forces to Raise Awareness of Rare Disease
Sat, 02/22/2025 - 03:57 NORD, Bionews Partner to Bring Powerful Educational Content to Rare Disease Communities
Wed, 02/19/2025 - 15:35 NORDs Latest Annual State Report Card Provides Crucial Benchmark as State Legislative Sessions Resume
Mon, 02/10/2025 - 13:57 National Organization for Rare Disorders (NORD) Issues New Report on Lifesaving Newborn Screening Programs
Fri, 12/13/2024 - 08:19 Tracey Sikora Joins the National Organization for Rare Disorders (NORD) as Vice President of Research and Clinical Programs
Tue, 08/27/2024 - 18:41 NORD and Rare Disease Diversity Coalition Release New Survey Findings on Inequities in the Rare Disease Community
Wed, 07/10/2024 - 17:45 Why Should I Get Genetic Testing If I Already Have a Diagnosis?
Thu, 05/23/2024 - 14:11 NORD Awards $65,000 in Grant Funding for Research into Two Rare Diseases, AVM and MMIHS, at NORD Rare Disease Centers of Excellence
Thu, 05/23/2024 - 14:05 Vermont Rare Disease Advocates Celebrate Passage of New Law Bringing Step Therapy Reform
Fri, 05/10/2024 - 15:07 NORD Launches First Canadian Patient Registries on Its IAMRARE Platform
Fri, 12/23/2022 - 12:13 Congress Year-End Legislative Package Delivers for the Rare Community
Fri, 11/18/2022 - 19:08 Request for Applications: New Patient Registries
Fri, 09/30/2022 - 15:34 NORD Statement on User Fee Reauthorization and Continuing Resolution
more

InfoBox

HomePagewww.rarediseases.org
Facebookwww.facebook.com/NationalOrganizationforRareDisorders
Twittertwitter.com/rarediseases
YouTubewww.youtube.com/user/raredisorders
LinkedInwww.linkedin.com/company/national-organization-for-rare-disorders
Wikipediaen.wikipedia.org/wiki/National_Organization_for_Rare_Disorders